Deandrea Hamilton
Editor
Turks and Caicos, March 15, 2025 – The disease is Type 1 Achalasia; which blocks the esophagus and makes eating a difficult and painful experience. It is so rare that each year only one case in every one hundred thousand people is detected. It’s likely why a North Caicos family found themselves in a frightening guessing game when the disorder attacked the esophagus of their ten-year-old son; driving him to a scary state of malnutrition as his body rejected just about every meal he tried to eat.
“Post surgery, he has recovered well. He is eating and back to his normal diet. I just want to give thanks to the doctors, and the Almighty for giving them the wisdom to recognise what was the necessary procedure and for taking us through it safely.”
On the other side of this medical dilemma was a team skilled with correcting the problem; they are based in Colombia, at the International Hospital of Colombia. Experience with the surgical procedure among the adult population had already prepared the doctors, which was easily able to transfer that expertise and attention to younger patients.
“Under the leadership of Dr. Juan Javier Acevedo, a specialist in Gastrointestinal Surgery and Digestive Endoscopy, and Dr. Carlos Augusto Cuadros, a specialist in Pediatric Gastroenterology and Nutrition, the medical team conducted a high-resolution esophageal manometry, a test that evaluates pressure and coordination of esophageal movements. The results confirmed the diagnosis of type 1 achalasia, allowing them to determine the most appropriate treatment approach,” explained a statement from the hospital which is part of the pool of medical facilities in the TCI’s Treatment Abroad Program.
The TCI National Health Insurance Board manages the Treatment Abroad Program, TAP.
Tivon Wright was enjoying a typical existence as an outstanding achiever of the Charles Hubert James Primary School in Kew, North Caicos.
The fifth grader, who recently earned second place prize at the FortisTCI primary school Science Quiz, is a gold medal singer in the Music Festival of the Department of Culture and secured first place in the Department of Education’s Math Speed Quiz, was growing well and doing well when classic achalasia hijacked his health.
Today, he is beaming and eating and for everyone who participated in his return to a normal, happy existence, this is a relief and a miracle.
“It was very scary because before that, we did not know what was happening, just that he was not eating and losing weight and everybody was worried.
I want to thank the almighty God and I want to thank the medical personnel here in Turks and Caicos because the diagnosis started here.
Dr. Gomo Laidlow examined him and he realized that there was something wrong. He (Tivon) would eat something, whether liquid or solid, and throw it up. Over time we saw him losing weight, drastically,” said Kwabena Katakayle Wright, Tivon’s father.
The recommendation from the North Caicos Clinic was for Tivon to see a pediatrician in Providenciales. That visit resulted in an x-ray which exposed the issue and gave the doctors in Colombia the information they needed to prepare for their first international patient for type 1 achalasia.
An image sent to the team from the Turks and Caicos revealed the blockage; the doctors knew immediately what needed to happen and activated a life-changing plan.
“There was a blockage in the esophagus, and the pediatrician said there is no pediatric surgeon team in the Turks and Caicos, that we would have to go overseas.
That is when Nurse Mickel of the National Health Insurance Board contacted me and told us that we would be accepted in Colombia.”
The family embarked on the one-day trip to Colombia last November, and the effort to get Tivon back to good health was tireless.
“They were very professional. From the time we arrived, the doctors and the nurses there were working around the clock. I really admire their professionalism and the type of service that we received,” said Mr. Wright.
In a virtual interview with Magnetic Media earlier this week, the joy on the faces of the doctors who performed that life-altering surgery was unmistakable and heartening.
“From the time they saw the image sent to them from the Turks and Caicos, they already had a plan in their minds.”
Mr. Wright confirmed the same, adding that an endoscopy was performed for further evaluation of Tivon’s condition.
“They verified that yes, there was a blockage but the pediatrician and the surgeon wanted to see a little more.”
Tivon was taken to a second facility for that evaluation and then the surgery was scheduled.
“To correct this condition, the specialists performed a peroral endoscopic myotomy (POEM), a minimally invasive procedure. Using an endoscope, we made a controlled incision in the lower esophageal sphincter to reduce pressure and allow food to pass normally,” explained Dr. Acevedo. “This is the first POEM case in an international pediatric patient at HIC.”
The doctors said they are truly excited at the results for Tivon and reiterated that it was their experience that qualified them for the task. We asked them about the possible origin of the condition.
“The specific cause of the disease is unknown, but there is a hypothesis that it is a viral infection and another hypothesis that it is an auto-immune disease that affects the throat and the esophagus. But the actual cause is unknown.”
During the virtual interview, Tivon had an opportunity to also share his gratitude and feelings. The student said that he was happy, that he trusted God the whole time and confirmed that his first meal, following the surgery, was an island favourite, “rice with chicken.”
It was prepared Colombian style and yes, it went down and stayed down to cement that master Wright was well on the road to full recovery.
“He can now eat normally, but it is important to continue with the follow up with the specialist and also with endoscopic images.”
A follow up visit to his doctors in Colombia is planned for this Summer.
Photos courtesy of Wright Family